I had a lumbar puncture on Friday. (I’ve had mani-pedi’s that were far more painful.) The doctor who ordered the LP thinks my symptoms are psychological. In other words, he believes I think myself sick because of OCD. A different doctor, the one who performed the lumber puncture, proved to be more curious. He took real interest when I shared with him that I hear a swishing sound when I move my eyes. He asked me if I heard my heart beat in my ears. “Yes, when I am lying down.” Doesn’t everybody? He thinks the idea of SCDS should be pursued (Superior Canal Dehiscence Syndrome).
Meanwhile, I am waiting for the outcomes of the lumbar puncture. Will it show any evidence of autoimmune encephalitis? Will the fact that I have been on antibiotics for two weeks alter the results? If I do have SCDS, it there a connection to this condition and brain inflammation or tick borne illnesses? I received partial results from the blood work ordered by Super Amy. Evidence of tick-borne illness is evident, but I will have a phone consult to understand the results more fully.
Meanwhile, I am waiting. I still feel weird in my head (along with the swishing sounds) and imbalanced. What does one do in such a place? For me– I cope by cleaning and creative endeavors.
Categories: The story continues