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pandasfam

(10) Dr. Rookie, On Tape, Part Three

In the third and last portion of the office visit, Dr. Rookie and I went back and forth for a few minutes about his desire to test my cerebral spinal fluid by doing a lumbar puncture (LP) versus my desire for someone to find out what current, active […]

(8) Dr. Rookie, On Tape, Part One

During my first visit to see Dr. Rookie in late April, his clinic scheduled a follow up visit in August.  In the week leading up to the August appointment, I sent Dr. Rookie a copy of my Cunningham Panel (CP) results, along with other family member’s test results […]

(7) Reaching out to my PCP

I really like my primary care physician (PCP), Dr. Hashi.  I felt like it was important to bring her in the loop about my visit/ subsequent correspondence  with Dr. Rookie about the neurological symptoms I’d suffered after the flu.  I wanted to let her know about the results […]

(6) Deciding to do the Cunningham Panel

The primary symptom of PANDAS is sudden-onset OCD.  I knew that I had baffling episodes of OCD.  Why not see if I had PANDAS?  Maybe I’ve had it for most of my life. As I already knew a fantastic PANDAS clinician, Super Amy,  I decided to pursue finding […]

(5) Why do I share dark journal entries?

The answer is pretty simple to me.  I watched the 20/20 special on PANDAS and Tim Sorel’s excellent documentary on PANDAS, “My Kid is Not Crazy.”  When I saw the children in acute stages of PANDAS  either screaming and yelling– or completely shut down, I recognized that behavior. […]

(4) Dark, dark journal entries

My journal entry in early June begins with the joyful reflections over a family member’s PANDAS recovery.  My health and mental health, however, are not so good. My last few months have been consumed with mental health struggles— that I have had as long as I can remember— […]