Based on Super Amy’s assessment from my health history and a physical exam, she ordered a slew of blood tests. Moreover, she insisted that I get a lumbar puncture (LP) from the neurologist. While my symptoms were all “in line” with PANDAS and co-existing underlying infections, other disease […]
Unable to make any headway regarding my PANDAS diagnosis with Dr. Rookie or my primary care physicians, I made an appointment with Super Amy, the clinician who treated my child. I thought I knew what to expect in the visit. I had gone through the initial intake interview […]
Dr. Rookie’s assertion that my physical aliments are simply mental and emotional ones hurts. Deeply. At this point, I do not think it is wise to continue being his patient. But what if he changes his mind about me? What if he changes his mind about PANDAS? What […]
My father is a retired physician. My mother was a nurse. My grandfather and great-grandfather were physicians. All were highly skilled and beloved in their communities. My parents, in particular, are some of the most courageous and kind people I know. Their integrity– personally and professionally– is off […]
Maybe the title of this post is unfair and an overstatement. However, it describes exactly how I felt after an office visit with a neurologist where I described neurological and physical ailments and he prescribed cognitive behavioral therapy*. My over-arching impression was, “My doctor does not see me […]
In the third and last portion of the office visit, Dr. Rookie and I went back and forth for a few minutes about his desire to test my cerebral spinal fluid by doing a lumbar puncture (LP) versus my desire for someone to find out what current, active […]
In the second portion of my office visit with Dr. Rookie, he proceeded to dismiss the veracity of the Cunningham Panel (CP) test: DR. ROOKIE : The Cunningham Panel — I sent you that paper [ Hesselmark and Bejerot, 2016 https://www.sciencedirect.com/science/article/pii/S0165572817300711%5D Basically they [Swedish researchers] took a bunch of […]
During my first visit to see Dr. Rookie in late April, his clinic scheduled a follow up visit in August. In the week leading up to the August appointment, I sent Dr. Rookie a copy of my Cunningham Panel (CP) results, along with other family member’s test results […]
I really like my primary care physician (PCP), Dr. Hashi. I felt like it was important to bring her in the loop about my visit/ subsequent correspondence with Dr. Rookie about the neurological symptoms I’d suffered after the flu. I wanted to let her know about the results […]
The primary symptom of PANDAS is sudden-onset OCD. I knew that I had baffling episodes of OCD. Why not see if I had PANDAS? Maybe I’ve had it for most of my life. As I already knew a fantastic PANDAS clinician, Super Amy, I decided to pursue finding […]
