It’s been over a week since I’ve had the lumbar puncture. I am waiting to hear back from the doctor to understand the outcomes of the tests. I am also waiting to learn more about the infections that inform my PANDAS diagnosis. So much for my sewing as […]
I had a lumbar puncture on Friday. (I’ve had mani-pedi’s that were far more painful.) The doctor who ordered the LP thinks my symptoms are psychological. In other words, he believes I think myself sick because of OCD. A different doctor, the one who performed the lumber puncture, proved to […]
Based on Super Amy’s assessment from my health history and a physical exam, she ordered a slew of blood tests. Moreover, she insisted that I get a lumbar puncture (LP) from the neurologist. While my symptoms were all “in line” with PANDAS and co-existing underlying infections, other disease […]
Unable to make any headway regarding my PANDAS diagnosis with Dr. Rookie or my primary care physicians, I made an appointment with Super Amy, the clinician who treated my son and is currently treating my daughter for PANDAS. I thought I knew what to expect in the visit. […]
Dr. Rookie’s assertion that my physical aliments are simply mental and emotional ones hurts. Deeply. At this point, I do not think it is wise to continue being his patient. But what if he changes his mind about me? What if he changes his mind about PANDAS? What […]
My father is a retired physician. My mother was a nurse. My grandfather and great-grandfather were physicians. All were highly skilled and beloved in their communities. My parents, in particular, are some of the most courageous and kind people I know. Their integrity– personally and professionally– is off […]
Maybe the title of this post is unfair and an overstatement. However, it describes exactly how I felt after an office visit with a neurologist where I described neurological and physical ailments and he prescribed cognitive behavioral therapy*. My over-arching impression was, “My doctor does not see me […]
